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We Want To Hear From You

JOIN OUR CHRONIC OBSTRUCTIVE PULMONDARY DISEASE PATIENT AND CAREGIVER RESEARCH ADVISORY BOARD.

 

What is the opportunity?

The University Health Network and Sunnybrook Health Sciences Centre is looking for patients and primary caregivers to join their Patient Engagement Board for Chronic Obstructive Pulmonary Disease (COPD).

They are seeking 6-10 individuals with COPD and 4-6 primary caregivers for a person with COPD to help them identify priority needs, provide strategic direction and feedback into the development, continuous improvement and translation of research questions and strategies.

What does the Chronic Obstructive Pulmonary Disease Board Do?

The COPD Board will work on projects led by a team of researchers at University Health Network, University of Toronto and Sunnybrook Health Sciences Centre with a broad range of expertise and patient experience. A few projects that are currently being worked on include the following:

Project 1: Canadian Best Respiratory Research Evaluation and Analyst Team of Health Experts (CanBREATHE)

This project will use data from millions of Canadians containing information on age, sex, ethnic background, immigrant status, health and other patient characteristics to answer questions like: What is the best way to prevent short term episodes of asthma and COPD in people of diverse backgrounds?

Project 2: WearCOPD

The goal of this project is to develop a wearable device, paired with a mobile application for people with COPD. The device will measure symptoms of COPD, including oxygen levels, heart rate and physical activity. The mobile application will be a tool where people with COPD can keep track of their symptoms over time, develop a COPD action plan and get more information to help them manage their COPD and improve their quality of life.

Time Commitment: Minimum 1-year commitment, with a maximum of 4 meetings per year, each of which will be up to 2 hours in length.

Other commitment: Provide e-mail feedback on project planning and research questions on an as-needed basis.

Location: Accessible locations within Toronto – To be determined.

How you can help:

By joining this Board, who will have the opportunity to provide valuable input into the long-term planning and decision making for research related to people with COPD.

TO APPLY:

If you are interested in being a board member, please fill out either the “COPD Patient Board Member Application Form” or the “COPD Caregiver Board Member Application Form” and email or mail to the attention of Tanya Son.
Please note that communication via e-mail is not absolutely secure. Thus, please do not communicate personal sensitive information via e-mail

For more information:
Tanya Son at 416-340-4800×5486 or tson@uhnresearch.ca

Mailing Address:
Toronto General Hospital
200 Elizabeth Street
14EN-222
Toronto, Ontario
M5G 2C4

Deadline for applications: January 21, 2019