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Ontario Lung Association Statement on International Rare Disease Day

Feb 28, 2014

In addition to the 2.4 million Ontarians who live with asthma, chronic obstructive pulmonary disease (COPD) and lung cancer, a significant number have rare lung disorders such as pulmonary hypertension, idiopathic pulmonary fibrosis and alpha-1 antitrypsin deficiency (hereditary COPD).

People with rare lung diseases face special challenges. The sense of isolation that comes with having an illness no one has heard of is often exacerbated by limited access to expert treatment and specialized drug therapies.

A national Orphan Drug Regulatory Framework will allow drug companies to bring treatments to Canada at the same time as Europe and the United States. It will also allow Canadians to participate in clinical trials at the same time as patients from other countries.

Lung disease in all its forms represents a growing health crisis in our province. Ontario needs a comprehensive Lung Health Action Plan to change the alarming trajectory of lung disease, improve health outcomes and save scarce health-care dollars.

For more information
John Chenery Ontario Lung Association
416-864-9911 ext. 292 | Cell: 647-293-9911